• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Race for Adam

  • Meet Adam
  • What We Do
    • Mission & Goals
    • What is Niemann Pick Type C
    • NPC In The News
  • Events
    • 10th Drive For Adam
    • Sponsorship Request
  • Get Involved
  • Contact Us

Adam Recke is First LVHN Patient to Enroll in International Childhood Alzheimer’s Research Trial

Sean Recke is a caregiver, fundraiser and patient advocate. He serves these roles in support of his 17-year-old son Adam, who 11 years ago learned he had Niemann-Pick Type C (NPC) disorder, a rare, fatal, genetic disease, also referred to as Childhood Alzheimer’s.
So when Sean, a Salisbury Middle School teacher, learned the second phase of a national research study of a drug that could help his son was available, he campaigned successfully with Thomas Whalen, MD, Lehigh Valley Health Network’s (LVHN) executive vice president and chief medical officer, for LVHN to become a study site. 
Read the Full Story
Tweet
Pin
Share
0 Shares

Reader Interactions

Leave a Comment Cancel

You must be logged in to post a comment.

sidebar

Blog Sidebar

TwitterFacebookPinterestYoutube

Join Our Mailing List

  • This field is for validation purposes and should be left unchanged.

Interested in Donating?

There are so many great ways to get involved. Volunteer your time or simply provide a financial donation. Every dollar makes a difference.
DONATE

Contact Information

Race for Adam Foundation

4415 Pheasant Run Court

Bethlehem, PA 18020

  • Meet Adam
  • What We Do
  • Contact Us


Copyright © 2025
Site Developed & Maintained by: KLK Web Services, LLC