• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar

Race for Adam

  • Meet Adam
  • What We Do
    • Mission & Goals
    • What is Niemann Pick Type C
    • NPC In The News
  • Events
    • 7th Drive For Adam
    • Sponsorship Request
  • Get Involved
  • Contact Us

Mission & Goals

The Race for Adam Foundation, a volunteer non-profit organization dedicated to funding research projects to find a treatment and cure for Niemann-Pick Type C disease (NP-C) and related neurodegenerative disorders, began in 2005.  In July of that year, Sean and Amy Recke’s seven-year-old son, Adam, was diagnosed with NP-C, a genetic neurodegenerative disorder for which there is no cure.  Due to the family’s kindness and respect for everyone, the community came together to help them; they are a family who has shown great patience, strength, and hope in this time of urgency.  Adam has touched the lives of everyone he has met and continues to embrace life with a perfect smile. With the support of the community, a seed of hope has grown and continues to branch through events that will promote awareness and funding for research into NP-C and related neurodegenerative disorders.  The Foundation is named in honor of Adam Recke.

Foundation Commitments

The Race for Adam Foundation is a strong community organization committed to helping all families who suffer from this rare disease and promoting awareness of Niemann-Pick Type C disease. It is a volunteer, nonprofit association and is recognized by the Internal Revenue Service as a 501 (c) (3) organization.

We pride ourselves in our commitment to finding a cure:

  • Board of Directors
  • Dedicated volunteers who support the operational functioning of the Foundation
  • Fundraising for research money supplied to major organizations such as SOAR and NNPDF
Tweet
Pin
Share
0 Shares

sidebar

Page Sidebar

TwitterFacebookPinterestYoutube
You Can Help Make a DifferenceJOIN US

Join our Mailing List

  • This field is for validation purposes and should be left unchanged.

Interested in Donating?

There are so many great ways to get involved. Volunteer your time or simply provide a financial donation. Every dollar makes a difference.
DONATE

Contact Information

Race for Adam Foundation

4415 Pheasant Run Court

Bethlehem, PA 18020

  • Meet Adam
  • What We Do
  • Contact Us


Copyright © 2023
Site Developed & Maintained by: KLK Web Services, LLC