The Race for Adam Foundation, a volunteer non-profit organization dedicated to funding research projects to find a treatment and cure for Niemann-Pick Type C disease (NP-C) and related neurodegenerative disorders, began in 2005. In July of that year, Sean and Amy Recke’s seven-year-old son, Adam, was diagnosed with NP-C, a genetic neurodegenerative disorder for which there is no cure. Due to the family’s kindness and respect for everyone, the community came together to help them; they are a family who has shown great patience, strength, and hope in this time of urgency. Adam has touched the lives of everyone he has met and continues to embrace life with a perfect smile. With the support of the community, a seed of hope has grown and continues to branch through events that will promote awareness and funding for research into NP-C and related neurodegenerative disorders. The Foundation is named in honor of Adam Recke.Foundation Commitments
The Race for Adam Foundation is a strong community organization committed to helping all families who suffer from this rare disease and promoting awareness of Niemann-Pick Type C disease. It is a volunteer, nonprofit association and is recognized by the Internal Revenue Service as a 501 (c) (3) organization.
We pride ourselves in our commitment to finding a cure:
- Board of Directors
- Dedicated volunteers who support the operational functioning of the Foundation
- Fundraising for research money supplied to major organizations such as SOAR and NNPDF