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Race for Adam

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  • Meet Adam

    Meet Adam



    Adam has a very rare disease

    called Niemann-Pick Type C.
    LEARN MORE
  • What We Do

    What We Do



    Funding research projects to find

    a treatment and cure for

    Niemann-Pick Type C

    LEARN MORE
  • Get Involved

    Get Involved



    Would you or your

    company/organization

    would like to sponsor a

    Race for Adam event?

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Help Us Find A Cure For Niemann-Pick Type C

There is no specific, FDA-approved treatment for NPC, only drugs to treat the symptoms. Fundraising for research money supplied to major organizations such as SOAR and NNPDF
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Mission & GoalsLEARN MORE
What is Niemann-Pick Type C?LEARN MORE
Adam UpdatesLEARN MORE

Together We Will Find A Cure

Support Of Accelerated Research for Niemann-Pick C, or SOAR-NPC, was created by parents and scientists as a grassroots response to the absence of treatments for this terminal disease.

The number one goal of SOAR-NPC is to work as quickly as possible to find evidence-based treatments and ultimately a cure for Niemann-Pick Type C disease, a rare neurological illness

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Contact Information

Race for Adam Foundation

4415 Pheasant Run Court

Bethlehem, PA 18020

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